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Diseases Rare

On 28 February, Day of Andalusia, was also the first World Day for Rare Diseases. For this reason, yesterday in the Senate held a ceremony chaired by HRH Doña Letizia, the chairman of the Senate, Javier Rojo, the Minister for Health, Bernat Soria, and the president of the English Association of Rare Diseases Rosa Sanchez de Vega. The Act's main objective was to highlight the growing concern of the English and European population on such diseases, increasing concern that was reflected in the Senate with the preparation of a paper on Rare Diseases. The Ministry of Health has launched a strategy on Rare Diseases. Keep in mind that the European Union between 34 and 36 million people affected by these diseases, and that in Spain the figure reached 3 million. Therefore, the national government through the Ministry of Health has set up 61 research groups dedicated to rare diseases, which scientists converge in 640 divided by 9 Autonomous Communities.

must emphasize that in Spain there are now, given the growing interest in this area-40 treatment centers specializing in complex. It is making the first census of rare diseases with patient records and is taking place, thanks to research with stem cells a line of research will be critical to the treatment of rare diseases. My interest

Huelva senator and mayor of Valverde del Camino on rare diseases is understood even better by the number of valverdeñas and valverdeños affected by the illness of Andrade, which belongs to the so-called Rare Diseases.

Valverdeña Association Andrade's Disease (Asvea), the Municipality of Valverde and the Andalusian Health Service have worked in recent times to achieve important advances in the diagnosis of disease and its treatment Andrade, both primary care setting, such as hospital care. There can highlight achievements in hospitals in Seville by transplanting called 'domino effect'.

But I know that we have a long way to go. It is necessary to improve the speed of diagnosis and treatment. That is why as mayor, senator and member of the Senate Health Committee and I participated with special interest in everything related to rare diseases.

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municipalism under

Spain is a historical reality seventeen autonomous regions established in the Constitution and 8,000 municipalities throughout the national territory. Within what is known as a state, central government, autonomous regions and local authorities constitute the bulk of public administration. In the municipality so happens that is closest to the citizen, a purely administrative services. The current reality is that the municipality has a different degree of development depending on each region, but this should not be controversial, because in any case, the Central Government, as guarantor of the state, has among its functions the match these various developments.

said, the municipality is a pending issue in many democratic development issues within the last thirty years. There are basic issues unresolved, discussed and debated in various forums, both in the municipal chambers, as in the autonomous parliaments and national levels. However, the 2009 can be considered to be a good year for English and Andalusian municipal issues.

Facts:
Among the anti-crisis measures implemented by President Zapatero, called State Fund for Employment has been a success. Eight billion euros, double the annual investment of all municipalities in Spain (four billion), thirty-one thousand projects to promote public investment will create two hundred thousand jobs due to economic effort 1.1% of Gross Domestic Product in response to recommendations of the EU for all its Member States.

An increase of 34% percent of the resources allocated to the municipalities as compensation for the business tax. An increase of 25% of the various municipal cooperation programs. At this time of crisis, allowed the council a budget deficit above 3% adding that all municipalities would be 0.2% of GDP.

In line with EU recommendations, and the product of collaboration between the Central Government, Autonomous and Local, are to reduce administrative burdens for companies in the period from 2009 to 30% (the EU recommended 25%). It is

carry out the transposition of the European services. This means that seven thousand administrative procedures must conform to the new policy, and this will require the modification of seventy three hundred laws and regulations. To not give more details, I am convinced that 2009 might be a good year for municipalism Andalusian and English one year, also in the municipalism will collaborate with the Autonomous Communities and the State out of the crisis.

But municipalism Andalusian and English, within the constitutional framework, has pending a number of core themes to develop in the coming years. Among them, solve the problems of Central funding, something that must be addressed in the context of regional funding. You have to complete the transposition of European Directive that affects local government. The Central Government will make legislative efforts in the coming months to reach a consensus with all political groups to amend the two laws governing local government, ie the replacement of the obsolete Base Act by Local Government Local Government Act and to update the existing Law on Local Finance for the municipality to exercise their security responsibilities.

Finally, at the Andalusian will carry out an important statutory development, beneficial to the municipalism Huelva after the referendum approved the Statute of Andalusia. This new status opens up great opportunities for the improvement of the municipal Andalusian and consequently to improve services to citizens.