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Diseases Rare

On 28 February, Day of Andalusia, was also the first World Day for Rare Diseases. For this reason, yesterday in the Senate held a ceremony chaired by HRH Doña Letizia, the chairman of the Senate, Javier Rojo, the Minister for Health, Bernat Soria, and the president of the English Association of Rare Diseases Rosa Sanchez de Vega. The Act's main objective was to highlight the growing concern of the English and European population on such diseases, increasing concern that was reflected in the Senate with the preparation of a paper on Rare Diseases. The Ministry of Health has launched a strategy on Rare Diseases. Keep in mind that the European Union between 34 and 36 million people affected by these diseases, and that in Spain the figure reached 3 million. Therefore, the national government through the Ministry of Health has set up 61 research groups dedicated to rare diseases, which scientists converge in 640 divided by 9 Autonomous Communities.

must emphasize that in Spain there are now, given the growing interest in this area-40 treatment centers specializing in complex. It is making the first census of rare diseases with patient records and is taking place, thanks to research with stem cells a line of research will be critical to the treatment of rare diseases. My interest

Huelva senator and mayor of Valverde del Camino on rare diseases is understood even better by the number of valverdeñas and valverdeños affected by the illness of Andrade, which belongs to the so-called Rare Diseases.

Valverdeña Association Andrade's Disease (Asvea), the Municipality of Valverde and the Andalusian Health Service have worked in recent times to achieve important advances in the diagnosis of disease and its treatment Andrade, both primary care setting, such as hospital care. There can highlight achievements in hospitals in Seville by transplanting called 'domino effect'.

But I know that we have a long way to go. It is necessary to improve the speed of diagnosis and treatment. That is why as mayor, senator and member of the Senate Health Committee and I participated with special interest in everything related to rare diseases.